Links

Links

Below you can find several links to PKU related sites. Please inform us about any broken or inactive links.

European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (ESPKU): http://www.espku.org

The John F. Kennedy Institute Denmark: http://www.kennedy.dk

Scientific Information and Literature Database of The National Center for Biotechnology Information (NCBI): http://www3.ncbi.nlm.nih.gov/entrez/dispomim.cgi?

The Knowledgebase of Phenylalanine Hydroxylase and Other Kinds of Mutations: http://www.pahdb.mcgill.ca

The European Society for Clinical Nutrition and Metabolism:
http://www.espen.org

Everything About BH4 or Tetrahydrobiopterin:
http://www.bh4.org

Official Journal of the Society for the Study of Inborn Errors of Metabolism: http://www.kluweronline.com/issn/0141-8955

Society for the Study of Inborn Errors of Metabolism (SSIEM):
http://www.ssiem.org.uk

Recommendations About Maternal PKU - from The American Academy of Pediatrics: http://www.aap.org/policy/re0024.html

News and Information About Phenylketonuria:
http://www.pkunews.org

Italian Metabolic Diseases Organization - Cometa A.S.M.M.E Associazione Studio Malattie Metaboliche Ereditarie ONLUS (In Italian):
http://www.cometaasmme.org

Turkish PKU Website (In Turkish - Currently Under Construction):
http://www.pkuturk.com

Save Babies Through Screening Foundation:
http://www.savebabies.org

A Parental Organisation in California:
http://www.pkuparents.org

See documents of control from fvst.dk
http://www.findsmiley.dk/

 

The History

Since 1959, the treatment against PKU-related diseases has involved following a strict dietary strategy primarily aimed at avoiding proteins.


Read more about the history about the PKU treatment

The History

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